nailedmehard's photostream

nailedmehard's photostream on Flickr.

My flickr

WE NEED TO REACH OUT

I was diagnosed with severe RA when I was 16, but I had been suffering of symptoms for a lot longer. RA robbed me of my teen years and has taken over all of my adult life. There have been many ups and downs and a few years back I started writing a book about my struggle. I believe it is important to to raise awareness, but above all be there for others suffering from the same disease. Whether if aperson gets RA in their youth or adulthood this is a huge cross to bare and most people have no idea what we're going through. Like cancer, this disease does not discriminate when it comes to age. It is a harsh reality that most of us feel we're experiencing alone... and that's one of the main reasons I believe in causes that expose autoimmune arthritis for what it is and offer comfort and support to all of the people who need something or someone to reach out to . After my book gets published I hope I can reach many, educate many more and expose the culprit that is RA without holding back. We can all learn from one another, people who live with or simply know someone suffering from RA can learn a thing or three from causes like this. Remember everyone, it doesn't matter how slowly we move forward as long as we DON'T STOP. Let's be there for one another and not let this this called RA alienate us and/or take away our lives. Our bodies are diseased... WE are NOT. We're still in there, at least I am. I will never let RA crush my spirit and take away my will to live.

World Autoimmune Arthritis Day

www.causes.com

Educate that 'arthritis' is not the same as 'autoimmune arth

Update

27 years NOW, and I a great part of me feels the same way. I have learned a great deal during the past year though. I started a public page on facebook called: RHEUMATOID ARTHRITIS UPS & DOWNS and it has been very helpful and productive so far. Here is a link to the page: http://www.facebook.com/pages/Rheumatoid-Arthritis-Ups-Downs/193210697375477?ref=ts
I also created a ((support)) GROUP called RHEUMATOIDS, which I originally started as a private/SECRET group, but today I decided to give "making it a public/OPEN group" a try. Some of the things we discuss are pretty personal though.... so perhaps I should just keep it private... hmmmm....
I know, I will ask the group members what they think. The majority vote determines the privacy settings of the group. :)
We *are* in this together... I refer to the group, and us, as RHEUMATOIDS. The group is a place where we all go and vent about out RHEUMATOID troubles, misadventures, frustrations, worries, fears, triumphs, struggles, perseverance, status and more. That is all I'll say for now. I am really going to try to update these blogs more often. We shall see how that goes.

SAVAGELY UNNATURAL

Disease has NAiLDMEHARD

IT DOESN'T GET ANY EASIER

26 years and... seems like I've just begun..
to understand....
-BUT HOME IS NOWHERE-
BY: AFI


To understand my, my intimate is no one
When the director sold the show, who bought its last rites?
They cut the cast, the music, and the lights

This is my line, this is eternal
How did I ever end up here?
Discarnate, preternatural
My prayers to disappear
Absent of grace, marked as infernal
Ungranted in dead time left me disowned
To this nature, so unnatural
I remain alone

Twenty-six years end, still speaking in these tongues
Such revelations while understood by no one
When the new actor stole the show, who questioned his grace?
Please clear this house of ill-acquired taste

This is my line, this is eternal
How did I ever end up here?
Discarnate, preternatural
My prayers to disappear
Absent of grace, marked as infernal
Ungranted in dead time left me disowned
To this nature, so unnatural
I remain alone

Give me something, give me something
Give me something, give me something
Give me something, give me something real

I lay strewn across the floor, can't solve this puzzle
Everyday another small piece can't be found
I lay strewn across the floor, pieced up in sorrow
The pieces are lost, these pieces don't fit
Pieced together incomplete and empty

This is my line, this is eternal
How did I ever end up here?
Discarnate, preternatural
My prayers to disappear
Absent of grace, marked as infernal
Ungranted in dead time left me disowned
To this nature, so unnatural
I remain alone

This is my line, this is eternal
How did I end up here?
Discarnate, preternatural
My prayers to disappear
Absent of grace, marked as infernal
Ungranted in dead time left me disowned
To this nature, so unnatural
I remain alone


We held hands on the last night on earth
Our mouths filled with dust.
We kissed under the trees
And in the fields
Screaming like dogs,
Bleeding dark into leaves.

It was empty on the edge of town
But we knew everyone floated along the bottom of the river.
So we walk through the waste
where the road curved into the sea.
And the shattered seasons lay
and the bitter smell of Burning was on you like a disease
In our cancer of passion you said
"Death is a midnight runner."

the sky came crashing down
like the news of an intimate suicide
we picked up the shards
and formed them into shapes of stars
that wore like an antique wedding dress
The echoes of the past broke the hearts of the unborn
as the ferris wheel silently slowed to a stop.


the few insects skittered away
in hopes of a better pastime
i kissed you at the apex of the maelstrom and asked
if you would accompany me in a quick fall
but you made me realize
that my ticket wasn't good for two...
i rode alone


You said the cinders are falling like snow.
there is poetry in despair
And we sang with unrivaled beauty.
bitter elegies of savagery and eloquence.
Of blue and grey.
Strange, we ran down desperate streets and carved our names in
the flesh of the city.

The sun was stagnated somewhere beyond the rim of the horizon
and the darkness is a mystery of curves and lines.
Still, we lay under the emptiness and drifted slowly outward,
and somewhere in the wilderness we found salvation scratched
into the earth like a message.